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Thursday, February 2, 2017

I'm Still Here

Hello all!  I used to update this blog frequently.  In those halcyon days of yore, I used to imagine that I had a legion of devoted followers, all hanging on whatever pearls of wit and wisdom I might dispense in my next blog entry.  Alas, those days have passed, and I'm not quite sure why.  I seem to have lost a bit of my creative edge.  Some of it is due to the fact that I have been fortunate to have been in remission for a long time now, so there isn't a lot of MM news for me to share these days.  I now assume that my imagined legion of followers has been reduced to a few desperate souls who might occasionally check to see if I am still alive.  I apologize to all of you whom I may have disappointed by my prolonged absence.

All right, so here I am to give you remaining devoted stragglers an update on what's been going on lately.  Actually it's been quite a bit.

View from our balcony
First, let me tell you about our fabulous Christmas vacation in Puerto Rico.  Our villa on the ocean was fantastic!  We had everything we could have wanted:  great weather, pool, beach, snorkeling, paddle boarding, surfing, deep sea fishing, frisbee, great restaurants nearby, fresh fish cooked at the villa, and most of all, a wonderful family gathering.  There were 13 of us, including all our kids and significant others (except Brian, Pam and Logan) and Gretchen's brother John and his family.  We all missed the passing of our beloved sister-in-law, Kathy, but it was a wonderful getaway that helped us all from mourning her passing at home with all the painful memories.

Beautiful sunsets
I think it would have been sad to have stayed at home and dealt with the emptiness of her absence with all the Christmas memories and familiar surroundings to constantly remind us of what we had lost.  This way, we were able to mourn appropriately, as we did, but still find some joy and escape during this difficult time.  Knowing Kathy, I think she would have approved.  I can see her smiling now.

Gretchen did well during this vacation, though she is still recovering from her esophagus surgery in August.  It has been a slow process.  On January 13, she went in to Beth Israel to have her esophagus dilated by Dr. Michael Kent for the third time.  That seemed to help, as she's able to keep things down better.  She is just now starting to eat more solid foods to supplement her smoothies and protein drinks.

Just to complicate things, she had gall bladder problems and it needed to be removed.  Serendipitously, the best GI surgeon at Beth Israel is Tara Kent, wife of Michael.  She scheduled the surgery for January 31.  She made sure that the entire team, including Michael, was there to help if there were any issues.  Fortunately, the laparoscopic surgery went well with no complications.  Gretchen came home the same day.  She is now home recovering and seems to be doing well.  Let's hope that she will feel a lot better soon.

We are so grateful to be near Boston where we have access to top specialists providing unparalleled medical care.  We learned something interesting about Dr. Tara Kent while there.  One of the nurses told us that when the Boston Marathon bombing happened, all the Operating Rooms were filled with patients, but they had more victims coming in.  They then set up an improvised OR in the recovery area right where Gretchen was, and this nurse helped as Tara attended many of the wounded coming in.  The nurse said that Tara was absolutely incredible as she helped save peoples lives in this improvised environment.  What an amazing story!  How lucky are we to have these people in our lives!

Well, what about me?  I know you are all really anxious to know.  Anyway, I had my colonoscopy and endoscopy last month as I reported.  I got the biopsy results back which were favorable.  My Barrett's esophagus is minor with no dysplasia, so I don't have to go back for another 3 years to check on it.  As for my colonoscopy, no polyps, so I'm to come back in 10 years!  Yeah right, like I'm even going to be here in 10 years.  If I am, and I have dementia, I implore any of you out there to please shoot me. With Donald Trump as president, there should be easy access to a murder weapon!  And I forgive you in advance.

As for my MM progress, my latest visit was great!  I'm still in remission and my numbers look good. I have an appointment next month with the hematologist, Dr. Connors, to check on my iron level numbers to see why I tend to have anemia.  We'll see.  So far, my red blood cell counts are fine since my last iron infusion last fall.

My latest issue is with a growth on my forehead.  I've had this for a about 3 months now.  I went to my PCP and he thought it was an infection.  I then went to see my dermatologist in December and she thought it was an inflamed cyst.  She gave me an antibiotic, but it didn't help.  I finally went back to Dr. Stewart last week to have the cyst lanced.  She thought it looked like a normal cyst, but she took a biopsy to check just in case.  Guess what?  The biopsy came back today and it is a squamous cell carcinoma!  That's just great.  What else do we need right now to further complicate our lives, huh?

Anyway, she referred me to a plastic surgeon to take care of it so I won't look like the Frankenstein monster afterwards, I hope.  I have an appointment next week to schedule the surgery.  I am now paying the price for all those years of basking in the sun with my lilly-white Irish skin.  Luck of the Irish, right?





26 comments:

  1. Always good to see your updates and know you are still "kicking"... some bumps in the road, that's always the way -sounds like you certainly know how to ride them - keep up the spirit Bill, that's #1 in beating anything! We are always thinking of you. Hoping to get some of our Synetics folks together up there sometime in the spring.. Maybe the May timeframe when your snow is gone. ha! take care hugs mb

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  2. Hi Bill! Thank you for the donation to the Myeloma Mashers! So nice of your to donate again! Looking forward to the race tomorrow! -Elizabeth

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  3. I just fell over this blog. I so hope you and your wife are doing well! It's no fun not to be well. The truth is we are all in the process of getting something, we just may not know about it yet. God bless.

    ReplyDelete
  4. ALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM MYELOMA
    Is my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from myeloma. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her myeloma and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from myeloma. and now she very mush okay without any side effects whatsoever, If you have myeloma , you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.

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  6. ALL THANKS TO DR WILLIAMS
    I was diagnosed of myeloma in 2011, I have tried all possible means to get cure but all my effort proved abortive, until a friend of mine introduced me to a herbal doctor , who prepare herbal medicine to cure different kind of diseases including myeloma , when i contacted this herbal doctor via his email, he sent me the myeloma herbal medicine via courier service, when i received the herbal medicine he gave me step by step instructions on how to apply it, when i applied it as instructed by Dr Williams i was totally cured from this disease within 1 months of usage. any body with similar problem can Contact this great herbal doctor via his email drwilliams098675@gmail.com for advice and for his product,and thanks to you admin for such an informative blog.

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  7. Although therapy has become more tolerable and once daily FDC tables have made it easier to adhere to prescribed treatment, it still requires that patients take their medication regularly to achieve sustained viral suppression. When treatment adherence is inadequate and replication is therefore not suppressed, But dr itua promised and fulfilled his promised to me as he said I will share his work to people that are suffering from Infertility, Herpes, Hepatitis A/B, Fibroid, HIV/ Aids, Alzheimer's disease, Arthritis, Copd, Diabetes, Liver/Kidney Inflamotry, Fibromyalgia, Parkinson's disease, I have read a lot of testimony online from Jesus McKinney,Achima Abelard and Tara Omar on how dr itua heal them with his herbal medicine I contacted him on Email drituaherbalcenter@gmail.com then we talk on whatsapp +2348149277967 he gave me instruction on how to drink it for two weeks then after drinking it for two weeks I went for test then I find out I was cured of HIV, I thank him allot i also send him some money for appreciation, Contact this great herbal doctor if you are a sick person.

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  8. As a sign of gratitude for how my wife was saved from myeloma, i decided to reach out to those still suffering from this.
    My wife suffered myeloma in the year 2016 and it was really tough and heartbreaking for me because she was my all and the symptoms were terrible, she always complain of bone pain, and she always have difficulty falling asleep . we tried various therapies prescribed by our neurologist but none could cure her. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and they left the contact of this doctor who had the cure to myeloma . I never imagined myeloma has a natural cure not until i contacted him and he assured me my wife will be fine. I got the herbal medication he recommended and my wife used it and in one months time she was fully okay even up till this moment she is so full of life. myeloma has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks admin for such an informative blog.

    ReplyDelete
  9. ALL THANKS TO DR WILLIAMS
    I was diagnosed of myeloma in 2011, I have tried all possible means to get cure but all my effort proved abortive, until a friend of mine introduced me to a herbal doctor , who prepare herbal medicine to cure different kind of diseases including myeloma , when i contacted this herbal doctor via his email, he sent me the myeloma herbal medicine via courier service, when i received the herbal medicine he gave me step by step instructions on how to apply it, when i applied it as instructed by Dr Williams i was totally cured from this disease within 1 months of usage. any body with similar problem can Contact this great herbal doctor via his email drwilliams098675@gmail.com for advice and for his product,and thanks to you admin for such an informative blog.

    ReplyDelete
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    1, Night sweats
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    14, Sores of the mouth, anus, or genitals
    15' HIV/AIDS
    16' Herpes virus
    17, Penis Enlargement
    18, Hepatitis AB and C
    19, Diabetes
    20, Ulcer

    ReplyDelete
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  16. Hi!!
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