Search This Blog

Wednesday, January 6, 2016

Still in Remission

Monday I went to the Farber for my monthly checkup, and everything is still good!  I am now on Cycle 43 of my Revlimid maintenance therapy that began in August, 2012.  I have now signed all the paperwork that extends this transplant clinical trial for another 3 years until 2018.  If I am lucky and stay in remission, I will still be a part of this trial until then.  What's really good news is that my Revlimid will still be cost-free to me as long as I am on this trial.  I can't believe how fortunate I have been so far with all of this.  What would have happened if I hadn't found Paul Richardson back in 2011 when I first got diagnosed with Smoldering Myeloma?  Where would I be today?  I don't even want to think about that!

The holidays were wonderful.  We spent Christmas at Brian and Pam's in New Jersey and got to watch Logan open his presents from Santa.  That was special.  The magic of these days will soon pass, but it's great to see it while we still can.  My bro, Terry and his wife Sherry came up for the week over New Years, so it was a really nice family holiday season.

I have signed up for us to go to Pat Killingsworth's beach party for MM patients at Amelia Island, Florida on April 1-3.  This will be the first time we have been able to go, and I am really looking forward to meeting Pat in person for the first time.  He has been through an awful lot lately, having tandem cell stem transplants, with all the associated complications, but he seems to be doing quite well now.  I hope to meet a lot of fellow MM survivors at the beach party.  Here is a link to his daily blog:  He continues to be a font of information to those of us in the MM community.  He's amazing!

After that, we plan to visit my college roommate friend, Steve, and his wife Sue in Coral Beach, Florida for a few days.  I hope this winter is a lot friendlier than the Snowmageddon of last year.  Maybe by the end of March we'll be glad to get out of Dodge.

May the Force be with you!

No comments:

Post a Comment