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Tuesday, May 8, 2012

This and That

Today I got a tentative schedule from DFCI.  I go in for my testing next Tuesday, and then Cycle 1 of the consolidation therapy begins the following Tuesday, May 22.  It all seems to be happening very quickly.

Based on the Cycle 1 starting date, it is becoming apparent that I won't have the third week of June off.  That means I have to cancel our hotel reservations for Bermuda, since I will have to be at Dana Farber for an infusion session on June 19 (our 25th anniversary).   :-(   Oh well...I could try to have them change things around, but we have decided to just go with the flow on this.  Instead of Bermuda, perhaps Gretchen and I could take a couple of days to go to Boothbay Harbor, Maine.  That would be nice too.

I have started taking various supplements to deal with my peripheral neuropathy.  These include Fish Oil, Vitamin B-6, amino acids, and cocoa butter.  I haven't noticed any improvement yet, but it's only been a few days.  I've been rubbing the cocoa butter on my feet at night, and that is quite soothing.

It looks like I'd better hold off on that garage sale on my extra hats.  I seemed to have jumped the gun on thinking that my hair was growing back.  Since my April 18 post, when I thought it had started to grow?  Nada, niente, zilch, nothing at all.  Sigh.  I keep looking in the mirror, but there is no change.  I just have to be patient.  Maybe a little Miracle Grow would help?

As I said, I don't like the Yul Brynner look.  People tell me that I look fine, but you know, people are going to say that.  A week or so ago, I was on a Face Time video call on my iPhone with my grandson, Logan.  He had just had his hair cut, so I removed my hat to show him Grandpa's "haircut".  He reacted with shock, and almost started to cry.  I quickly put my hat back on.  The truth is reflected in a child's eyes.

But this is such a minor issue.  In the meantime, I'm still feeling good, which is all that matters.


  1. Maybe we could get you some of those Chia pet seeds to slather on your scalp....might work, you never know!


  2. Shelby's hair is growing back now. It's a short "do", according to her pictures on Facebook anyway, but it's full. She finished her transplant process about six months ago and just had her last line removed two days ago.

    Moral: Just be patient and things will turn around!