Multiple Myeloma, as with any cancer, changes ones life. Things are never going to be what they used to be. One soon learns to adapt to the "new normal". As a small instance, today I am collecting my 24-hour urine sample for tomorrow's visit to the Farber. So far, I have avoided the mistakes of last month, and I have remembered to collect every piss sample so far. However, I forgot to get a collection bottle on my last visit to DFCI, so I washed out a half-gallon plastic milk bottle to serve as a substitute. So far, so good. Yes, this is the new normal. But believe me, I'm not complaining, just reporting.
I read some good news on Pat Killingsworth's blog the other day. Recent results have confirmed that Velcade has a very good response rate as induction therapy for those with high-risk MM (such as my t(4;14)), and it works well as a maintenance therapy. Since MLN9708 is quite similar to Velcade and I also had Velcade as part of my consolidation therapy, that's pretty good news. They say the jury is still out on Revlimid maintenance therapy, but previous studies that I have looked at over the past year or so seem to validate Revlimid as a good option for maintenance as well. I don't know for sure, but I may have just been lucky enough to hit a "sweet spot" in my therapy for my particular risk profile at the right time. I can only hope so.
I'm still going to the gym 3-4 times a week. Usually, Gretchen gets up early and prods me to get up and go. Today, she was sleeping in, so I got up and encouraged her to go. We both did. I'm taking that as a good sign that we can team up to keep us both going when one of us is ambivalent.